On November 5, Sumit Singh pointed his phone at his wife in an Instagram Live from a salon — and Jenny Slatten did what she has done all year: she smiled. Her freshly styled brown hair curled down her back. Sumit captioned them with the line that has travelled furthest: “Salon day! Even after dealing with such a big issue in life, she doesn’t forget to smile!”
A Salon Chair, a New Hairstyle, and the Same Smile
On the surface it was an ordinary errand — a hair appointment, a day out of the house — but little in Jenny’s life is ordinary right now. Jenny was diagnosed with ALS in December 2025, after about a year of symptoms; they went public in early 2026. She now uses a powered wheelchair — a change fans first saw in her first wheelchair photos — and Sumit is her full-time caregiver at home in India.
In late September, a fundraiser friend said Jenny was “getting weaker by the day.” The change shows most in her speech. In a recent update, Sumit asked if she wanted to say anything. “No, I can’t talk,” she answered. “Unfortunately, the ALS is progressing, and it’s starting to show more in her talk,” Sumit said — talking has become painful for her.
The Poem He Wrote for “My One True Love”
That is why the poem Sumit shared with the salon photos hits so hard: as her voice fades, his words do the work for both of them. He calls her “my love,” “my life,” “my best friend,” “my wife” — then wrote her this: “I keep calling you my darling, my dear, for you are the one I hold so near.” And this: “You’re more beautiful than the stars above, one of a kind, my one true love.”
The poem is not new — it is the poem Sumit shared earlier, and the salon-day post gave it a new frame: a smiling Jenny, fresh hair, its author beside her. Beside the update on her speech, they read less like romance than a husband saying aloud what his wife can no longer say.
What the Fight Looks Like Day to Day
Jenny takes Edaravone and Riluzole, two drugs that slow ALS, and has tried acupuncture, according to reports. Her treatment in India is not covered by insurance; friends set up a GoFundMe to help with the costs. Sumit does most of the daily care himself — mornings, hair, makeup — work that never makes a headline.
YOU MAY LIKESTOP Sharing That Viral Post: The Cruel Jenny Slatten Death Hoax Debunked — She’s Alive and Still FightingThe fundraiser has become a battleground too: in October, Jenny answered its critics: “For all those people who are mad about the GoFundMe for my ALS. You can have the money if I can have your health.” Sarper Guven’s “Stand Up for Jenny” benefit sold out, so a second was added. At home, the strain runs deep: the couple were recently at the centre of the row over moving out, after Anil ordered them to stay in the family home.
A Daughter’s Plea, and a Door Still Closed
Beyond the house, a bigger door stays shut. Jenny’s daughter Christina Cuevas has called for an emergency humanitarian route so Jenny can seek care in the US, after Sumit’s visa was refused. For now they remain in India, Sumit doing the daily care himself, while the disease takes ground monthly.
None of that shows in the salon photos — and that is the point. The pictures do not pretend the illness is gone; they show what it has not taken — a woman who still wants her hair done, a husband who still writes poems, a smile still on time. If you could send Jenny one message after that smile, what would it say — and what should Sumit hear when smiling is the hardest part of all?
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